PatientWisdomLedScience
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The Scientific Imaginaries of Blood Disorders
Following the success of the Summer of Unlearning, A Series to Reimagining Healthcare, we will zoom in on a condition labelled by Western science to understand its underlying scientific imaginaries. Inspired by this series, we will continue with blood—perhaps the… Continue reading
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What If Communities Living With Rare Conditions held the Key to a More Humane Medicine? Report from the World Orphan Drug Congress 2025, Amsterdam.
The next scientific revolution will be led by patients’ wisdom and human dignity, and it won’t be televised. Last week, at the World Orphan Drug Congress in Amsterdam, I had a profound experience. As I moved between conversations—wearing my different… Continue reading

